THE PHELAN MCDERMID ASSOCIATION AND RUN LIKE A HERO IN THE MEDIA

We thank Televisión Española, Onda Regional and elcorreo.com for their support in raising awareness and disseminating the Phelan-McDemid syndromed
entrevistas medios

The month of October has lot of importance for all those who help in the awareness and dissemination of Phelan-McDemid syndrome. Telling the world about the experiences of affected families and the actions carried out to encourage research and support is not an easy task. For this reason we want to thank Televisión Española for the report made to Norma Alhambra, President of the Association Phelan Mcdermid, to Onda Regional for the report made to the coordinator of the Association, Malena Martínez Cruz, who explains all the details of the second edition of Run Like To Hero and to elcorreo.com for the news of Oier’s family.

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