Virtual

RLH Global Running Week

October 18 to 26

Walk or run 5 km from anywhere in the world and share it on social media using the hashtag #RunLikeAhero!

Race numbers on sale from 09/15 to 10/26

What is the Global Phelan-McDermid Running Week?

It is a global inclusive sport solidarity initiative promoted by the Phelan-McDermid
Syndrome Association
, a non-profit organisation dedicated to raising awareness of this
rare disease and supporting the families of those affected.

This project began in 2020 as an online race due to pandemic restrictions. The 2025 edition will be its sixth. Over the past six years, this event has brought together Phelan families in Europe, North America and Latin America. In Spain, in addition to the virtual version, several in-person races are organised in different cities.

All proceeds from the race registration fees go to research and activities for the benefit
of people with Phelan-McDermid Syndrome and their families.

How can I participate?

You can participate from anywhere and at your own pace!

BIB PRICE: 5€.

This virtual race will take place from 18 to 26 October 2025, during the week of activities for International Phelan-McDermid Syndrome Day (22 October), when you will have the opportunity to compete with people from around the world and, at the same time, contribute to research into the syndrome.

To sign up, simply purchase your race number on this website and, from 18 to 26 October… put on your trainers and get going! You can join this charity race by walking, jogging or running a distance of 5 kilometres. Remember to take photos and upload them to your social media using the hashtag #RunLikeAHero!

And if you’re not a big sports fan, you can also contribute by purchasing a bib in the Kilometer 0 category.

We will send you your printable bib in PDF in an e-mail that you will receive after the purchase.

Why should you join Global Running Week?

All the money raised from this event will be donated to the Phelan-McDermid
Syndrome Association in Spain if you live in this country.

And if you participate from another place, we will donate 50% of your registration fee to the Phelan organisation in your area.

In this way, we make it possible for all Phelan associations around the
world to raise funds for research into this rare disease.

We encourage you to join the Run Like a Hero Global Running Week by purchasing
your race bib now
on this page, and to commemorate Phelan-McDermid International
Day on 22 October by sharing your race experience on your social media with the hashtag #RunLikeAHero.

If you would like to find out more about how you can help, please contact us or contact the organisation in your region.

Do your bit!

Previous editions

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Do you want to sponsor RLH?

Write us and we will inform you about how you can support this charity project.

Would you like to be a volunteer?

Write to us and help us organise RLH with your company’s volunteer programme or on an individual basis.

Do you have any questions?