In this race we always win!
Virtual
RLH Global Running Week
October 19 to 27
Walk or run 5 KM from anywhere in the world!
BUY YOUR BIB FOR 5€.
What is the Global Phelan-McDermid Running Week?
It is a global inclusive sport solidarity initiative promoted by the Phelan-McDermid
Syndrome Association, a non-profit organisation dedicated to raising awareness of this
rare disease and supporting the families of those affected.
This project emerged in 2020 as an online race due to pandemic restrictions. The 2024
edition will be its fourth edition. During these four years, this event has brought
together Phelan families in Europe, North America and Latin America. In Spain, in
addition to the virtual version, several in-person races are organised in different cities.
All proceeds from the race registration fees go to research and activities for the benefit
of people with Phelan-McDermid Syndrome and their families.
How can I participate?
You can participate from anywhere and at your own pace!
BIB PRICE: 5€.
This virtual race will take place from October 19 to 27, 2024, during the week of activities for the International Phelan-McDermid Syndrome Day (October 22), when you will have the opportunity to compete with people from different parts of the world and, at the same time, you can contribute to the research of the syndrome.
To sign up, you just have to buy your bib from this website and, from October 19 to 27… put on your shoes and run! You can join this solidarity race by walking, jogging or running a distance of 5 km.
Remember to take photos and upload them to your social networks using the hashtag #RunLikeAHero!
And if you are not a sports fan, you can also contribute by making a donation,
purchasing a solidarity bib in the Kilometre Zero category.
We will send you your printable bib in PDF in an e-mail that you will receive after the purchase.
Why should you join Global Running Week?
All the money raised from this event will be donated to the Phelan-McDermid
Syndrome Association in Spain if you live in this country.
And if you participate from another place, we will donate 50% of your registration fee to the Phelan organisation in your area.
In this way, we make it possible for all Phelan associations around the
world to raise funds for research into this rare disease.
We encourage you to join the Run Like a Hero Global Running Week by purchasing
your race bib now on this page, and to commemorate Phelan-McDermid International
Day on 22 October by sharing your race experience on your social media with the hashtag #RunLikeAHero.
If you would like to find out more about how you can help, please contact us or contact the organisation in your region.
Do your bit!
Previous editions
Running for Phelan
Follow us on Instagram
Do you want to sponsor RLH?
Do you want to be a volunteer?
Write us and help us organize RLH with your company’s volunteer program!
