Global Running Week

Run around the world with us!

Virtual

RLH Global Running Week

October 17 to 25

Walk or run 5 km from anywhere in the world and share it on social media using the hashtag #RunLikeAhero!

Dorsales a la venta desde el 15 de septiembre

What is the Global Phelan-McDermid Running Week?

It is a global inclusive sport solidarity initiative promoted by the Spanish Phelan-McDermid
Syndrome Association, a non-profit organisation dedicated to raising awareness of this
rare disease and supporting the families of those affected.

This project began in 2020 as an online race due to pandemic restrictions. The 2026 edition will be its seventh. Over the past seven years, this event has brought together Phelan families in Europe, North America and Latin America. In Spain, in addition to the virtual version, several in-person races are organised in different cities, such as Madrid, Barcelona, Pamplona, Herencia and Ortuella.

All funds raised from the race registration fees go to research and activities for the benefit of people with Phelan-McDermid Syndrome and their families.

How can I participate?

This virtual race will take place from 17 to 25 October 2026, during the week of activities to commemorate International Phelan-McDermid Syndrome Day (22 October), when you will have the opportunity to compete with people from around the world and, at the same time, contribute to research into the syndrome.

To sign up, simply purchase your race number on this website and, from 17 to 25 October… put on your trainers and get going! You can join this charity race by walking, jogging or running a distance of 5 kilometres. Remember to take photos and upload them to your social media using the hashtag #RunLikeAHero!

You can participate from anywhere and at your own pace!

BIB PRICE: 5€.

And if you’re not a big sports fan, you can also contribute by purchasing a bib in the Kilometer 0 category

We will send you your printable bib in PDF in an e-mail that you will receive after the purchase.

Why should I join?

Your participation plays a vital role in accelerating research and supporting individuals living with Phelan-McDermid syndrome and their families.

The Global PMS Running Week is a worldwide initiative with one shared purpose: every registration helps drive impact where it is needed most. All international participants, through their registration fee, will contribute to the Phelan-McDermid Global Organisation (PMS GO), helping advance its global mission. Participants based in Spain will directly support the Spanish Phelan-McDermid Syndrome Association, organiser of the race.

We encourage you to join the Run Like a Hero Global Running Week by purchasing
your race bib now on this page, and to commemorate Phelan-McDermid International

Day on 22 October by sharing your race experience on your social media with the hashtag #RunLikeAHero.

Be part of the change!